Burzynski Scam

Our Story Featured in USA Today!

Our story has been featured in the November 15-17, 2013 weekend edition of USA Today. Check out the full article here. The Detroit Free Press has also picked up the USA Today story.

The following are excerpts from the story.

“When you want so hard to believe something, you end up listening to your heart and not your head,” says Lisa Merritt of Armuchee, Ga., whose husband, Wayne, was treated briefly by Burzynski in 2009. The couple say that Burzynski misled them about the type of treatment that would be offered, as well as the cost. Burzynski, she says, is “the worst kind of predator.”

“Wayne Merritt, a farmer from Armuchee, Ga., went to see Burzynski in 2009 after being diagnosed with pancreatic cancer. He had hoped to receive antineoplastons, an unapproved drug that Burzynski legally prescribes through an FDA-approved clinical trial. Merritt didn’t qualify for the trial, and was disappointed to realize that the drugs he had been prescribed were conventional chemotherapy. Merritt abandoned the treatments after only a few weeks after learning that they would cost $30,000 a month.”

“Wayne Merritt and his wife, Lisa, say they got a “high-pressure sales pitch” from the Burzynski Clinic. “We felt like he was out to get every penny he could get from us in a short amount of time,” said Lisa Merritt, from Armuchee, Ga. The Merritts, who tell their story at burzynskiscam.com, said one of Burzynski’s employees, Marc Stephens, called them in 2011 to say that they could face legal action if they did not take down the site. The couple refused, said Lisa Merritt, also a cancer survivor. “I said, ‘I have had breast cancer and faced death. My husband was diagnosed with pancreatic cancer and he’s facing death,’ ” Lisa Merritt told Burzynski’s representative at the time. “What do you think you can threaten us with that is going to scare me after this?’”

Don’t Make the Same Mistake We Did

Ok, I know people don’t like to waste a lot of time reading about people’s complaints BUT, if you or a loved one has received the diagnosis of cancer, PLEASE take the time to read this about our experience with the Burzynski Clinic in Houston Texas! We feel we were scammed and would like to save others from experiencing the same!

The Beginning

My husband was diagnosed with stage IV Pancreatic/Liver Cancer in September 2009. This sent us on a frantic search to find a suitable treatment. I had just finished up treatment for Breast Cancer and he had watched me go through chemo and radiation. So, to say the least, he was not thrilled with the idea of having to do the same, especially when the prognosis for pancreatic cancer is very grim in itself (virtually no hope of survival according to the medical community). We were told he had less than 6 months with conventional treatment and 6-12 months with treatment. We felt we had to try something that would – at the very least – give us hope.

Stanislaw Burzynski: Our Godsend?

In came The Burzynski Clinic in Houston TX. They claimed to have had success with Pancreatic/Liver Cancer patients! Up to 5 years of survival, we were told. Wow! 5 years sounds like an eternity when you’ve been given only 6 months!!!! They sent us all the paperwork, we sent them all the medical records, and plans were made to become a patient. We were told that insurance would cover, not all, but some of the treatment. We knew there would be some out of pocket expense, due to his treatment protocol being somewhat out of the norm from the rest of the medical community. We travelled to Houston expecting an initial, upfront cost for consultation with Dr. Burzynski and staff, and an overall checkup.

We were a little taken aback when we arrived and the “clinic” was a “suite” on the second floor of a 3 story building. Hmmmm…I tried to pass it off. When you want so hard to believe something, sometimes you end up listening to your heart and not your head. Next came our meeting with the doctors…it went well. Dr. Burzynski personally assured us that he had had success with this particular type of cancer. “Two months” he said, “and we’ll see a difference.”

boingboing

Then it was time to go see the Insurance Coordinator. Whoa! Granted, the first visit wasn’t that bad. She asked for the initial upfront money we knew we were going to need to pay. However, from that day forward, this was our life:

  • Office Visit
  • Simple checkup by the nurse, using what we considered to be sub-standard equipment
  • Doctor visit (not Burzynski, never saw him again)
  • Addition of medication
  • VISIT TO THE INSURANCE COORDINATOR TO HEAR HOW MUCH WE WOULD BE CHARGED FOR THE ADDITIONAL MEDICATION. We were told over and over again “this is upfront, out of pocket, but I’m trying to get the insurance company to pay on it.” We have good insurance, one of the best.

These meds did not cost hundreds of dollars, but thousands!

I’ll spare the gory details, but when all was said and done:

  • We were out almost $20,000 to the clinic
  • We were out money for accommodations since the Burzynski Clinic is an outpatient facility
  • We were out money for travel expenses
  • AND, after we got home and started figuring up all the medications they had put him on and how much it would cost us to keep him on them, we nearly choked on our tongues when it added up to almost $30,000.00 per month!

You would think that is as bad as it could get…but NO!!! After we decided there was no possible way we could afford to do this we called the clinic to see how we might start weaning him off the medicine prescribed by Burzynski Clinic. WE WERE NOT TRANSFERRED TO A NURSE OR DOCTOR, BUT TO THE INSURANCE COORDINATOR!!! We never received any information from them with instructions on how to come off the meds. We ended up calling our local pharmacist and he was able to help us out.

Conclusion

  • Along with the long list of other meds that were supposed to work in conjunction with each other, the Burzynski Clinic gave my husband standard chemotherapy medications. We were never told that two of the medications were conventional chemo medications. We discovered from our local pharmacy that one medication the Burzynski Clinic had charged us over $2300.00 for could have been purchased from the pharmacy for around $170.00.
  • After we stopped with their treatment, we were told that he WOULD NOT BE able to take part in any first round clinical trials because he had taken chemo medications – no matter how small the dose, or how short the duration. WE WERE NOT TOLD THIS UP FRONT.
  • We contacted several facilities, including The University of Texas and MD Anderson Cancer Clinic, none of which will see him because of the treatment he received at the Burzynski Clinic.
  • His only option now is conventional chemo treatment, which is what we were trying so hard to avoid in the first place!

PLEASE, IF YOU ARE CONSIDERING GOING TO OR TAKING A LOVED ONE TO BURZYNSKI CLINIC, BE CAREFUL! DO YOUR HOMEWORK! THEY WILL TRY TO DRAG YOU IN A BIT HERE AND A BIT THERE AND BEFORE YOU KNOW IT, YOU MAY BE LIKE US…LEFT WITH NO PLACE TO TURN AND $20,000 POORER!

AND we only received treatment for less than a month!

As for the people they had helped with pancreatic/liver cancer; they gave us a list of contacts. The sheet contained 4 names of pancreatic patients. 1 would not allow you to contact them and, out of the other 3, the earliest diagnosis was in March of 2009! Where are the people that have survived for 3 years, 4 years, 5 years!!!!???? Heck, even 1 year would have been nice!

In our opinion, the Burzynski Clinic is selling false hope at a price no common person can afford!

Comments From Others

Melissa says:

December 12, 2011 at 5:18 pm

I am so sorry that you, your husband and family was put through all this! I will be passing on the word in hopes to protect others from this.

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Tom Stark says:

December 14, 2011 at 10:59 am

I am so sorry that you fell victom to such a preditor. In sales training they teach you to appeal to the emotional side of people, and here he clearly did just that. I also understand how disappointing it is to not be able to participate in trials. Trials are often our best hope if we wish to do better than typical results.
My prayers are with you.
Tom

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Bobbie Mattasits says:

December 14, 2011 at 11:00 am

I am going for first appointment @ Burzynski Clinic today…….What should I know ??

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Lisa says:

December 15, 2011 at 11:04 am

You should read what happened to us,…. and then recognize the “red flags” when you see one! Good luck on your journey and may blessings follow you!

Dr. Cindy Peel says:

March 12, 2012 at 9:47 am

Traditional chemo medical treatments for cancer are just as fraught t with sad stories of financial ruin and regimens that fail. The truth is that there are no guarantees for cancer cures. Both sides can make a case for their treatment choices and outcomes. Both sides can name cures and both sides can name failures.
The small size of the clinic is most likely due to Dr. Burzynski’s impoverishment by the establishment. There are clinics all over the States that are just as simple and perhaps unpalatable. Clinic appearance does not equal success.
I would suggest that you research whomever you decide to obtain treatment from and look at the statistics for the cure or remission of the specific type of cancer you have.
Good luck.

Jonny says:

December 15, 2011 at 9:00 pm

I know of a product called ddobyul made by UnhwaUSA, a biotech company. They were the first to extract the “immortal cell” from plants (cell that allows yew trees and other plants to live so long) and with stem cells they reproduce more. I’ve heard it has cured cancers and AIDS in tests in Africa. It isn’t FDA approved yet, and they are working on patenting their tech, but if you are interested you could research more about them. (they also have a cosmetic line with anti-aging products made from ginseng and yew I think..they work pretty well) Good luck!

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Fred says:

December 20, 2011 at 1:04 am

Your story isn’t believable. It sounds like you are bitter or are simply shills for the FDA/NCI to discredit Dr. Burzynski and his work. There is a ton of documentation to back up Dr. Burzynski’s work, peer-reviewed, published in medical journals. You have nothing to prove anything you have stated here. I hope nobody buys your “story” and does their own research.

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Lisa says:

December 21, 2011 at 9:20 pm

I hope people do their own research as well. In fact,… I believe I state that fact at the end of our story. And frankly, I could care less if “you” think my story is believable or not. We are real people,… fighting a real fight for life,….. and just trying to help others from being “taken” as we feel we were.

Do you know anyone,…. I mean, a real person who has gone to BC and has won their fight? I could not find any. I hope it never happens to you or a loved one,… but if you are ever in need of treatment for cancer,… and you go to BC…… let me know how it goes. In fact…. print our story out and take it with you…… see if you can’t start checking off events as they happen to you,… exactly as they happened to us!

Blessings on your journey!

Lisa

kelly says:

December 27, 2011 at 3:06 pm

I just watched a documentary on Dr. Burzynski, and found many very happy survivors share their stories. It seemed rather sad and infuriating that our own government would block such a treatment from being accessible to patients all over the country. I’m thinking the reason why you don’t hear many positive stories, is because big pharmacy companies (along with our ever trust-worthy government are discrediting Dr. Burzynski – as they haven’t found nor been able to patent a cure for cancer.

Cancer has become a HUGE industry for money-making. I guess our government would rather watch people die, then lend any helping hand.

Lisa says:

December 30, 2011 at 10:30 am

Kelly,
It seem you have fell victim to the same campaign that so many others have. Burzynski is very good at playing the “poor mis-treated doctor, who has ‘the cure’ to save the world from this dreadful thing called cancer, if ONLY the FDA would stop its persecution of him”. Go dig in some of those websites that are positive,… and see if they don’t lead you right back to sites sponsored by Burzynski himself. For years he has flooded the internet with websites that look like they are from individuals,…. but in fact….. not. Do your own homework. Check it out. And please, let me know what you find.

As far as the survivors,…. where are they? I mean where are they….. really? Have you talked to any of them? Do they have websites out there telling their story of being cured by him? If they are truly out there….. “long term survivors” I’d LOVE to hear from some of them.

I would have to agree that there is also a campaign to keep a cure suppressed,…. I just doubt that cure has been discovered by Burzynski.

Lisa Marie

Tim says:

January 6, 2012 at 8:38 pm

@Fred, you bizarrely claim that “There is a ton of documentation to back up Dr. Burzynski’s work, peer-reviewed, published in medical journals.”

In fact, there is literally nothing, as described at length by a number of scientists here:
http://freethoughtblogs.com/blaghag/2011/11/a-look-at-the-burzynski-clinics-publications/

You suggest that people shouldn’t believe Lisa and should do their own research. I imagine that anyone who does research it will end up siding with Lisa.

Let’s also remember that even if Burzynski was doing legitimate trials and publishing promising results, it would still be unethical to charge a patient or their family hundreds of thousands of dollars to participate in a clinical trial. Normal practice is for trial patients to be paid to participate – Burzynski wants his experimental subjects to pay him! What a crook!

All the best to you, Lisa.

Tim

JeffyBob says:

January 25, 2012 at 10:55 am

Well Lisa, seems as though you were looking to get something for nothing. Life has a qwerky way of looking out for those who look out for others. Your bitterness is seemingly unfounded and your experience is based on a monetary downfall. If your husband is as bad as you say, if he is as important as you think, than what is it worth to sustain his life for his, and your children. If you have none, than it is likely that your more upset about the EGO that goes with money. If ya want something for nothing, go rattle a cup on a street corner, if your wanting to sustain life, there is a price you must pay. Overall, would you give everything, anything, to add another 5-10yrs. to your husbands existance? Evidently not, and now your bitter looking for sympathy for your own ignorance. Be happy in what you have, there are so many more people that have given all to end up with much less. One thing you have yet to mention, is your husband still alive? If so, be happy for the time he still has with you, if not, be happy for the time you had together. Either way, get over the money, get over your own stupidity, and get on with your life. I neither condone or condemn the DR. for his claims, but your walking away is seemingly the frustration of want, not need. IF, and providing you had a substantial complaint, you would be proceeding with criminal charges, be it though you havn’t a leg to stand on other than to complain. Be the person you are meant to be and stop your bitching, ignorance is only your own fault, and for that you can only blame yourself. As for all those who seek this type of therapy over chemo, know that the chemo will cost roughly about 7 times the total cost, adding the side affects of radiation and the complications it causes, it’s worth the possibility that his therapy is far better, not only in treatment, but total life health and expectancy.

Lisa says:

February 29, 2012 at 6:23 pm

JeffyBob,

Ok folks, the ONLY reason I approved this comment from this retard,…. instead of sending it straight to the trash folder is to let people know just what kind of cruel people are out there,… and how much we are having to endure to keep our story out there.

Frank Castle says:

February 19, 2012 at 2:38 pm

This whole site is a scam. I did my research and it turns out these people were paid to say this. Their story does not exist. I hope no one buys into this. Wow. Can’t believe our government would go so far as to create something like this. Cancer is a MULTI-BILLION dollar business and they’ll be damned to just let that go. So sad.

Lisa says:

February 29, 2012 at 6:04 pm

Frank Castle, YOU, Sir, are full of CRAP! We are REAL people!!!!! This IS our story. We have not been paid one single red cent!!!

So….. why don’t you tell us,…. “how much did Dr. B pay you to discredit us?”

susan says:

February 20, 2012 at 10:19 pm

Fred,

How dare you accuse this family of being shills of some sort.”A ton of documentation?” That’s the problem Fred, there is no documentation.Thirty long years and no documentation that this works. Just testimonials.Well DEAD mean don’t talk Fred. And there are plenty of dead patients who received Dr.B’s antineoplastons. Do you know Fred that every single little child they had fund raisers for in the UK to get the hundred of thousands of dollars that are needed to pay for this are DEAD. Yes some of his patients are alive. But he also gives regular old chemo with his antineoplastons. So how can anyone know which treatment was responsible? Dare to look closer Fred. You will be much wiser for doing so.

Paul Smith says:

March 20, 2012 at 7:05 pm

What I can’t understand is why pharma or wotever the companies names were have tried to steal the patents??!!! Why as he been taken to court so many times?? Its clearly stated its not because of the success of the treatment because it has been proved successful! And yes it is expensive because there is no government funding!!?? surely if there was even a hint of a successful cure or treatment they would have at least tested it instead of stopping it and trying to put him in jail! I do feel lisa that you should not have enrolled for it until you had a better understanding of the costs! But I do feel that the FDA dealings are very shady! Money is a big factor here! take into consideration the whole aids problem with needles! glass needles were safer but they changed them to plastic despite the health risks because they were cheaper to produce! There was a film I watched based on this scenario!

K says:

December 20, 2011 at 9:45 am

@jonny
Would that be anything like taxol/paclitaxel? By which I mean the incredibly successful cancer drug that has already saved thousands of lives, was originally produced from yew leaves and is now available as a generic drug?
http://en.wikipedia.org/wiki/Paclitaxel

Just because something is “natural” doesn’t mean it’s a better cure than a synthetic drug. Some synthetic drugs are gerat, others less so. The key thing is to look at the scientific evidence to show whether it works or not.

Reply

jonny says:

February 5, 2012 at 11:28 pm

yes it is paclitaxel. I’m doing a research project right now, and I found their publishing in Nature Biotechnology, and it says they’ve come up with a cheaper way to produce it. they isolated a cell similar to a plant stem cell. either the same or similar, i’ll have to reread it. and they can produce 200% to 1000% more paclitaxel than present methods. Plus, i’ve heard many success stories in my church about it. and failures when people have decided to stop using it.

Bob says:

December 23, 2011 at 8:03 am

Just recieved a Christmas card from a still living pancreatic cancer survivor cousin. She did go to Dr Burzynski’s Clinic for treatment. She went back to the Mayo Clinic for a recent checkup and her Doctor called her a ” Medical Miracle”. I do have the Christmas card to document this! I’m sure she is a living believer in his work.

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Lisa says:

December 23, 2011 at 10:31 pm

Bob, I’m very happy your cousin is doing well! It’s nice to hear a positive story….. I don’t hear many. However, I would be interested to know……. What stage was the cancer in? Had it spread anywhere else? Was there liver involvement? Was it inoperable or did she undergo surgery? Had she received treatment previously at Mayo Clinic?

There are soooooo many elements that factor in to a cancer diagnosis.

Bob says:

December 26, 2011 at 7:26 pm

I haven’t spoke with her lately, but I’m going to Phoenix after the first of the year and plan to spend some time with her. I know her prognois was bleak and her color was starting to turn green. After I do get more details I can forward those on to you. Now I have questions for you. I just watched the documentary last night and now I do understand the adversity this man has been through thanks to the Drug companies,National Cancer Institute, and FDA. I’m convinced they do not want a cure for this dreadful disease. They just plain make so much money they don’t want it to change. I wish I would have known about Dr. Bursynski when my brother was diagnosed with a brain tumor in 1998. Mayo Clinic gave him death sentence which in the end he recieved. Its amazing how many he cured with the same thing he had. They never gave my brother one bit of hope. My question for you is: You may not like this, but since money and not a cure is what the Drug companies,NCI and FDA are foused on. Evidently you and your husband’s experience wasn’t like you thought it should have been. Are you certain you gave them enough time to get results or maybe didn’t have the finacial resourses to contimnue. I would like to know just what your motivation is to discredit this man and his clinic? Have you watched the documentary? Those are real people whos lives he has saved. Are the Drug companies, NCI, and FDA supporting your efforts in some fashion?

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Lisa says:

January 3, 2012 at 11:23 am

Bob,
No, our experience was not what we expected….. NOT what we were told! And no,…. we did not give it much time,…. because the stated cost rose so drastically and quickly, that it was utterly impossible for us to stay on the treatment plan. AND our insurance company WILL NOT pay claims to BC….. they consider him to be “suspicious” we were told,… and NEVER pay claims to him. Although, on MANY occasions they told us insurance would pay on the claims……. we were told to “pay up front” and they would credit us when the insurance paid! Crock!!!!

AND LETS JUST SET THE RECORD STRAIGHT!!!! WE ARE NOT BEING PAID BY ANYONE, NO DRUG COMPANIES, NO NCI, NO FDA!!!! But conventional cancer treatment is expensive too!!!!! (not to the standards of what BC charges) So,…. if someone would like to start paying me for trying to keep desperate people from losing their life savings to this guy,…. I’d be happy to take it!!!

Mayhem says:

October 10, 2012 at 1:56 pm

You can’t fake all of those people who have made countless trips to Washington and testified under oath about their experiences with this man. That was NOT an “infomercial”. That was actual videos of actual court proceedings with REAL PEOPLE.

It may be expensive, and it’s not surprise that insurance companies won’t pay anything on him as they are going off of the information from the FDA and all of the other health care “experts” who are trying to smear this man’s name all the while trying to steal his patent! Why do you think they would try and steal his patent if it had been proving ineffective? They KNOW it works! The cancer industry is no doubt freaking out over the idea that there may ACTUALLY be a cure out there and they are trying to control it.

Interestingly, I just went to the BBB and looked him up, and guess what? He only has 7 complaints filed on him, the Texas Board of Medical Examiners being one of them (and the only one you can actually read the details on, btw). I worked for a large “for-profit” university where I supported the President who would occasionally get complaints filed with the BBB on behalf of the university. More often than not, it was from students who were past due on their bills trying to get their account cleared by claiming we falsly charged them to the BBB. Any business in business for over 20 years, is going to potentially run into an unsatisfied customer who will take their grievance to the BBB thinking they will get their way just because they filed with the BBB. It is also understandable that someone would be driven to the level of contacting the BBB especially with something as important to people as education, health or financial matters.

While I do think it sucks that it may cost a lot of money to have services provided from his clinic, however, if the insurance companies and the FDA, et. al., would work with him, then most everyone COULD benefit from this treatment. For goodness sakes, there was a task force assigned to try and figure out why this man was being harrassed when the first 4 attempts to discredit him proved he had done nothing wrong! That is not fake. THAT REALLY HAPPENED! I live in Houston and remember all of this in the news.

Kate says:

December 27, 2011 at 11:38 am

Can you please tell me if there are any other stories like yours? We are looking into his clinic and can find many succsess stories but want to hear all the facts.

Thank you!

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Kate says:

December 27, 2011 at 11:40 am

Are there any other stories like your printed out there? We are looking into the Burzyinski Clinic and want all the info we can get. Not just succsess stories.

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Lisa says:

December 27, 2011 at 1:22 pm

Kate,

http://burzynskiscam.com/helpful-links/ – Many, many stories out there of real people who have not had good experiences with the clinic. BC has done an absolute great job of showering the internet with “his” , so called, “successes”. If you research the orientation of many of the (positive) pages,…. you will find that many lead straight back to BC. Even the ones that “look” like they are coming from somewhere else. DIG DEEP! Don’t just do a general search!!! It’s out there,… positive and negative. Good luck in your research and in whatever you decide.

Blessings,
Lisa

William says:

January 1, 2012 at 6:12 pm

I just saw the documentary and all those people are real, and alive, and doing well. I don’t have to talk to them to know that what he’s doing is real. They don’t need websites to show that he healed them, he was part of the biggest legal battle between the FDA and an individual ever!! There are videos of people saying he cured them or he cured their children all over youtube:
http://www.youtube.com/watch?v=Kdg2BFXEzns <—-Click on that
http://www.youtube.com/watch?v=K1S7XDHC2VA&feature=related <——click on this one too
http://www.youtube.com/watch?v=HrifZ6Ry4ZY&feature=related <—— click on this too

how can you say that there aren't any survivors? And these are only a few of them!!

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Mark says:

January 19, 2012 at 8:43 pm

go to wikipedia and look up this doctor. He has no cure, no scientific evidence and not one scientist has been able to replicate the results he claims. He is in trouble with every legal agency you can think of.

William says:

January 2, 2012 at 11:41 pm

and here is a video of his building:
http://www.youtube.com/watch?v=MbadRxToNe8&feature=endscreen&NR=1
I don’t think you did quite as much research as you say you did

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Lisa says:

January 3, 2012 at 11:13 am

Ok,…. I spent my precious time viewing ALL your video links,…. and I remain unmoved.
First of all,…. We have BEEN TO THE BC,…. we have been in their building,…. and it is a suite on a single floor of that grand looking building in the video,…. AND The clinic title shown on the building in the video is NOT THERE! Someone must be good at Photoshop.
Second,…. he DOES use chemo,… and in doses commonly used by the medical community. He prescribed chemo to my husband,… without our knowledge that it truly WAS chemo.
THIRD,… and this is the biggest…….. WE WERE TOLD THERE WERE SURVIVORS, FROM THE SAME DIAGNOSIS OF STAGE IV, INOPERABLE, PANCREATIC/LIVER CANCER, ,…….. but they were unable to put us in contact with anyone! NOT ONE!!!! And believe me,… we begged!!!!! That was the whole reason we went there!!!! Their stories of success with my husbands specific diagnosis!

Now,… please do some homework yourself…… This site could keep you busy reading for a week or so……..
http://josephinejones.wordpress.com/2011/11/29/burzynski-blogs-my-master-list/

And my favorite on the website,…..
Dr Burzynski’s crooked antineoplastons Ron Lewis, Sceptical Letter Writer, 28/11/11
… which said:

“Dr” Stanislaw Burzynski of the Burzynski Clinic (Houston, Texas) is a crook, a conman, a charlatan, a fraud and a quack. This reprehensible little man ruthlessly exploits the desperate relatives of the incurably ill with a series of phoney ‘clinical trials’ whose sole outcome is not to expand the knowledge of mankind, but to separate the poor families from their life savings. “Dr” Burzynski has been making claims for an antineoplaston therapy for the last 35 years yet apparently has not deigned to publish the results of any of his phoney ‘clinical trials’ in any prestigious peer-reviewed medical journal. None of the misleading cancer-treatment claims made by the clinic (on their website and on other social media, such as YouTube) for “Dr” Burzynski’s antineoplaston therapy are supported my the tiniest jot of published rigorous clinical evidence, yet he happily promotes these bogus treatments. I have not seen any evidence that the PhD “Dr” Burzynski claims to hold exists anywhere but in his own imagination (though I do not doubt that “Dr” Burzynski holds a legitimate medical qualification). I have not seen any evidence that “Marc Stephens” is a qualified and registered lawyer, nor indeed that he is even a non-fictitious person. If “Dr” Burzynski or his “lawyer” draw my attention to any factual errors on this page, I should be delighted to correct them upon receipt of substantiating evidence.

Here are my contact details – do get those defamation writs in the post before the Christmas rush! (Don’t be put off by by my winter address. This is still a UK-based blog.)

Quoteworthy though it may be, I don’t expect to see that in print any time soon.

Lisa says:

January 3, 2012 at 11:14 am

See below as the reply to this comment as well……..

Bryan says:

January 3, 2012 at 12:24 pm

I was told of Doctor Burzynski by two friends in California. Both knew a close (different) friend that had been cured by the clinic. We were alos told of the Doctor this morning by a person from our Church. The Clinic was able to cure they same type of inoperable brain tumor that my daughter has. And we are down to the wire.

Reply

Lisa says:

January 3, 2012 at 10:13 pm

Bryan,
I wish you the very, very best in whatever path you choose to take.
Blessings!
Lisa Marie

Diane says:

February 20, 2012 at 11:15 pm

Bryan,

Let me just say that it is a well known fact in medical science that brain tumors are notoriously and routinely misdiagnosed. It is often not possible to biopsy these tumors, since some lie deep in the brain. Many tumors that are thought to be malignant and to carry the worst possible prognosis, turn out to be benign. This accounts for what is often referred to as a spontaneous remission. So it’s entirely possible that some of these miracle cures by Dr.B are nothing more than misdiagnosed benign tumors.

Brie T says:

February 28, 2012 at 5:58 pm

Scam! This creepy guy talked to me on the phone and followed up with an email and it was not about treatment, just about $$$! I am out and furthermore, if you ask for actual names of people to check out doctors claims and you get none, run!

Suz says:

January 3, 2012 at 8:21 pm

I think that the false hope that is spread by these unscrupulous people is something that they will have to atone for in the next life. God Knowes !!!

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Deborah Hutchison says:

January 5, 2012 at 4:58 pm

I feel badly for you on this misadventure but I’m not sure what you expected? I’m not aware of what your insurance would have covered had you gone the conventional treatment route but the bill from Burzynski is not a surprise at all. Look at the evidence again in the movie and you will see clearly…he has something so good there the big pharma folks were trying to steal it from him. He has been allowed to treat but the FDA(thanks to a favourable settlement in the lawsuite) is there to support the big pharma and the movie clearly demonstrates that also. If I ever have to go see him and be treated through his clinic, I am well expecting that it would cost me likely my current lifestyle to have my life. What value is your husband’s life worth? For me and my husband, it is worth whatever it takes. You must understand the constant expense this clinic and doctor has had to go into his research and legal bills caused from the FDA(which is really just headed by big pharma execs), he has to cover costs too! In terms of him giving you chemo treatments in there also…I’m sorry, I just can’t believe it. Never take anything at face value. It is the responsibility of the consumer to be educated on what they buy/ingest etc. Good luck!

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Lisa says:

January 10, 2012 at 8:10 pm

Deborah Hutchinson,
The first think I’d like to say about this is,…. isn’t it wonderful that all of us are entitled to our own opinion.

As far as my husbands worth? First of all, I can’t believe you’d even question another human like that! I love my husband very much,…. and would give anything to save him up to and including my own life!!!!! Additionally let me add….. my husband is still doing wonderful! WITHOUT burzynski! We chose other routes,…. and yes they are too expensive! And we are in debt up to our eyeballs even though insurance is paying a ton!!!!!!!!!!! BUT at least the professionals we chose are forth-coming! Don’t charge us for things they “didn’t do” like BC did….. and they allow us to fill our prescriptions at any pharmacy we’d like instead of telling us we “have to get it through them….. at THEIR price”…… again, as BC did!!! BIG DIFFERENCE!!!!!

Julie says:

February 13, 2012 at 9:11 am

Firstly, Burzynski never claims to cure cancer. He offers a less invasive treatment method for cancers that have almost no chance of being cured by conventional methods, and he has had some documented success. Secondly, it costs a great deal of money to manufacture his drugs. It is not a big pharma enterprise and the expenses are huge. And he’s not selling something grown out of his garden. He is selling a therapy that the U.S. government tried to patent for itself. Thirdly, he is participating in a clinical trial approved by the FDA and the conditions of which are that has to use traditional methods in conjunction with his therapy. That is the condition of his being allowed to use them at all. He is doing nothing illegal. He is in full compliance with FDA mandates. Fourthly, only very progressive insurance companies will even think about covering this therapy. It is still in the trial phase and insurance companies don’t like to cover therapies in the trial phase. And lastly, conventional treatments for these fatal cancers have abysmal success rates. We are not going to get anywhere by dismissing out of hand anyone who wants to investigate new methods.

Diane says:

February 20, 2012 at 11:49 pm

Lisa,

Thank you so much for speaking out about what can only be described as one of the biggest scams in medical history. Dr.B has made millions from this thirty year scam. This doctor is ‘living large’ in his 15,000 sguare foot, 15 bedroom, 15 bathroom mansion in Houston (public information).

And to Deborah. Yes it’s up to the consumer to do their homework…..up to a point.
Dr.B owns the pharmacy that he INSISTS his patients have their drugs bought at. This is a MAJOR conflict of interest. And not allowed. It got him into trouble with the authorities. Not to mention the exorbitant mark up! I think Lisa you said he charged $2,300.00 for a medication you could have purchased at the local pharmacy for $170.00. This illustrates the mans ethics and honesty. I wonder how many people had to scrape together their last dime to pay these overinflated prices for drugs?

Jim says:

January 6, 2012 at 1:13 pm

Remember the Salk Vaccine????? Why did that hit the market??? In an interview, Dr. Salk said “there is no patent, could you patent the sun?” Here’s the reference: http://en.wikipedia.org/wiki/Jonas_Salk .

This was a man who REALLY cared for God’s children more than for PROFITS from the patent for a revolutionary medicine. How about this path Dr. Burzynski? Could this work for you?

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Julie says:

February 13, 2012 at 9:48 am

I’m sure the pharmaceutical companies would just love it if Burzynski were to hand over his patents. Watching how fast they would snap them up might make everyone a little less skeptical of the effectiveness of his therapies. But why shouldn’t Burzynski profit? He’s done the investing and the research. It’s not unethical for him to make a profit for his work, just like anyone else. Why do we want people with the potential to save our lives and our health to work for free?

David S says:

January 7, 2012 at 7:21 pm

There is a Kindergardner across the street with a optic Glioma. His Parents have scoured the world for the best treatment. They have been to Hopkins, Dana Farber, Sloan, etc They visited Burzynski and were unimpressed. They felt it was very unprofessional. One of the docs with him at the initial consult was wearing a lab coat from an institution he was associated with over 10 years ago. They sad that before Burzynski would see him the wanted a pile of documentation. They provided the documentation and it no one had even looked at it when they cot there. They asked for cure rates, prognosis, etc. Burzynski et al were completely non-committal. One of the docs did admit to be a standard oncologist. They had to pay $5000.00 in advance for the consult, which they weren’t informed of before arriving. These folks are very wealthy and smart. Again, they were very unimpressed. They said they might consider it if all else fails. As a cancer survivor at high risk for recurrence, I wanted to believe that Burzynski was legit. I have my serious doubts. This is just another peice of data for people to consider.

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David S says:

January 7, 2012 at 7:29 pm

Best Answer – Chosen by Voters
Burzynski claims to cure cancer with extracts from human urine.

There shouldn’t really be any need to say more, but here goes.

Burzynski is actually an MD (though his claim to a PhD is apparently dubious); however he had no specialty training in cancer and had no preclinical or clinical cancer research experience when he announced his ‘cure for cancer’ 35 years ago.

His ”antineoplastons” -the substances he has isolated from human urine which he claims cure cancer – have never been shown to have any effect on cancer; attempts to replicate his claimed results by the National Cancer Institute, the Japanese National Cancer Institute and Sigma-Tau Pharmaceuticals failed.

Be wary of unsubstantiated testimonials about miracle cancer cures. You have no way of knowing whether the person ever had cancer in the first place, much less has been cured.

And you have no way of knowing whether, if genuine, they are still alive.This is from Orac’s Respectful Insolence blog:

”…Dr. Burzynski first gained fame for his antineoplastons back in 1988, when Sally Jesse Raphael featured four “miracle” patients of Burzynski, who, according to her, had had incurable cancer and failed conventional therapies but were then cancer-free, thanks to Dr. Burzynski. Unfortunately, four years later in 1992, Inside Edition followed up these four patients:

‘In 1992, “Inside Edition” reported that two of the four patients had died and a third was having a recurrence of her cancer. (The fourth patient had bladder cancer, which has a good prognosis.) The widow of one of Raphael’s guests stated that her husband and five others from the same city had sought treatment after learning about Burzynski from a television broadcast — and that all had died of their disease. In 1995, a federal grand jury indicted Burzynski for mail fraud and marketing an unapproved drug. The indictment charged that he had billed insurance companies using procedure codes for chemotherapy, even though his treatment was not chemotherapy. He was tried in 1997 but not convicted.’ ”

More Data for consideration taken from Yahoo Answers

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Carl says:

February 24, 2012 at 3:01 pm

So you think that a drug’s being derived from urine automatically discredits it? Have you ever heard of Premarin? This is a major conventional drug derived from horse urine. Not that I’m recommending Premarin – just saying that your argument essentially boils down to “yuck, urine!” As an argument, that’s not even remotely logical. And so I would say to your argument “yuck, irrationality!”

Corina says:

March 17, 2012 at 9:24 am

Here are a couple of problems I noticed after I looked up Burzynski:
1. Someone mentions there is no sign on the building, the sign is there: big and shiny.
2. The comments about the “miracle cure” are silly, Burzynski’s clinical trials have shown improvements in 30 to 50% of the treatments. He is not making claims of 100% success, but the most important thing to me is: NO SIDE EFECTS. What is worse to see your family be destroyed by the suffering of your loved one from so many chemicals and radiation or take this alternative? To me this is a no brainer. My mother has suffered from the consequences of chemo and readiation, and had a horrible death anyway.
3. I am suprised to see that Burzynski has won these little battles and he is not in jail by now, because the FDA and Pharma have tried their hardest to put this guy away forever.
Anyway, I am only trying to be open minded about this and look at all the facts…

Alyssa says:

January 8, 2012 at 11:20 am

I understand that it’s hard that it didn’t work for your husband. The Burzynski documentary may be slightly biased, but it’s true. Not every treatment works for every patient. How many times have you read about people dying from cancer when chemo or radiation didn’t work? Probably the same (if not more times) than the antineoplaston treatment– the only difference is that antineoplastons don’t have any negative side effects.

My brother had a Stage IV malignant brain tumor at the base of his brain stem when he was 12 years old. He was given 6 months to live. My parents had the option of giving him chemo and radiation or let him die. Because of the harsh side effects of chemo and radiation they researched other options and found Burzynski clinic. The BC treatment had no negative side effects and showed quite a bit of success with my brother’s type of cancer. They chose that option– yes it was expensive, but it paid off. My brother has been in remission for over ten years now with absolutely no side effects. After 10 years we were still paying off the bills as insurance wasn’t covering it. But is that price they had to pay worth my brother’s life? Yes, absolutely.

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Lisa says:

January 10, 2012 at 7:55 pm

Alyssa,

It’s nice to hear a success story…… I hear so few concerning BC.

Mike says:

February 19, 2012 at 10:34 am

Good Post – This guy is not a magic man….The fact that he saw, identified something that no one else had before was the real theme….The second part and ALL of you folks should not hammer him, but hammer the FDA….What you don’t know DOES kill you…..and when you looking into the background of this man, 5 Grand Jury investigations and no indictment? What’s that tell you? It should tell you a lot…The FDA is in bed with the Pharmaceuticals, the OBAMACARE bill, written in Part by John Kerry, a Left Wing Liberal that gives money to a company he INVESTS in….Another Senator’s wife, the wife of Senator Chris Dodd, who is in charge of writing the Senate’s bill, sits on the boards … of Javelin Pharmaceuticals Inc

I suggest you look this up….NOW here’s what YOU SHOULD be thinking as all the readers should Unless the hack of this web site doesn’t allow my post, and they won’t….But if they do….WHY? WHY would any LEGITIMATE Government Branch such as the FDA try to Thwart someone’s research? Because he didn’t sit on the boards they (The FDA did)….Because he did his OWN research, apart from those back room deals the FDA makes….THE BILLS that are written are not to look out for your health and mine…No, no…They are WRITTEN to advance the Political agendas of those who are involved like John Kerry, Like Dodd’s Wife….Its amazing what people DON’T KNOW then want to blame the Doctor. Maybe if they gave as much money to his research as they do others, more would have been saved….

Aldous says:

January 13, 2012 at 2:05 pm

It’s surprising how many obviously phoney posts there are here supporting this quack. There is no justification at all for him charging thousands of dollars for cheap chemicals and unproven treatment. His supporters testimonies are dubious to say the least. Falsifying his credentials and not qualified in cancer research? That’s enough to send any sensible person running the other way.

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Mike says:

February 19, 2012 at 10:23 am

You clearly are one who doesn’t think for yourself, nor do research…..Obama loves people like you as does the shampoo industry, car salesman, chewing gum advertisers…..Hey, if its on TV, It must be good and HEY if the FDA says, he’s a Quack, well that MUST be true, too!……Mindless Bamadrones……This is how he got elected..He depends on useful idiots like you

Blake says:

January 15, 2012 at 1:15 pm

Am I missing something, or did you abandon treatment due to cost? Drugs cost more at clinics and hospitals versus your local pharmacy is a surprise?

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Blake says:

January 15, 2012 at 4:32 pm

So why is he a “fraud” and a “quack” as you assert. Would hate for you o be sued for such libelous accusations.

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Lisa says:

February 29, 2012 at 6:35 pm

Blake,

Yep! Already been threatened…… after cancer,…. even that is not so scary!

Jason says:

January 17, 2012 at 12:28 am

First of all…I cannot imagine the heartache and pain that some of you have experienced at the hands of this dreaded disease.

With that said, here are a few comments/questions…

-every patient who drops out of a clinical trial is counted as a failure. Period.

-the US Government recieved 11 patents for the same procedure that Dr. Burzynski had patented over 30 years ago. Then they sued him for patent infringement. This lawsuit along with other predatory lawsuits have cost the American taxpayers over $100 million

-LET ME BE CLEAR…privately funded clinical trials are not required to be compensatory to the participants. Dr. Burzynski has funded his own research, if you want to be a part of that research, you must pay to play

-It is quite obvious that we are missing the point of this whole situation…normal medical practice is to treat malignant cancers with POISON. Someone has come along with an alternative that isn’t poisonous and we are mad at him? Because your insurance won’t cover the costs?

Hmmm…I can poison myself/my loved one, my insurance will pay for it and die anyway with a poor quality of life. OR I can sell everything I have, beg, borrow and steal for the chance to not poison myself and maybe be cured.

MONEY is at the core of this vitriol toward Dr Burzynski. Simple as that. The FDA and The NCI are responsible for thousands of deaths because of their fear and greed.

I guess I have now seen everything…advocation for poisoning dying people, because their insurance will pay for it.

I would do anything I had to in order to save someone I love. I guess Muslims are right about one thing…the most dedicated wins.

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Brian says:

January 23, 2012 at 1:06 am

Lisa, you do realize that we are talking about cancer correct? Probably the scariest and darkest word in the English language. I have seen the documentary and done my research. The documentary (as optimistic as it may be) even shows statistics of mortality rates of 20-30%. So guess what, statistically it WILL be hard to find survivors. We are of course talking about CANCER, which takes the lives of millions every year. But his numbers are still better then other treatments. The court cases against him even state that the success and validity are not in question but instead, whatever they can think of on a given day IS. Which are provided by sources that he is in no way involved with. So stop with the phony story, and begging us to do our OWN research by providing us with links. If the FDA was constantly taking you to court and causing you to spend millions in legal fees, then you too would probably charge more to cover cost. You are hiding behind the ideologies construed by modern day medicine and politics! The documentary and scholarly journals provide the patients you seek, your just too blind to see them. But stand behind the FDA, who has raided his office on multiple occasions and never mentioned any of these below satisfactory claims of his office or employees that you speak of, and again, are yet to establish a case against the validity of antineoplastins. I hope nothing but the best for you and your husband, but you are incorrect. It is sad that you see that value money (which seems to be your only true argument) and “hear-say” more than human life.

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peacout76 says:

January 23, 2012 at 5:27 pm

I’m sorry that you had a bad experience. However, for you to claim that the therapy is a scam is a very broad generalization from just one bad experience. There are many people that have used the therapy with great success. I still think Burzynski is a much better option than the Chemotherapy Scam — now there is a real scam! The fact you had to pay so much out of pocket is more a testament to how the system is rigged so that people are forced into chemotherapy. For you to create a website entitled “Burzynskiscam” I think is misleading. Maybe a more appropriate name would be “OneBadBurzynskiexperience.com.” It is obvious Burzynski is on to something since he obtained patents and the government tried to copy his patents, so don’t mislead people by claiming that the whole therapy is a scam. Hmmm, maybe you do work for the FDA.

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Lisa says:

February 29, 2012 at 6:27 pm

peaceout76,

Again? Really? “you work for the FDA”….. It’s getting a bit old.

Lacie says:

January 23, 2012 at 6:26 pm

I’m sorry for you, it sounds like you let your skepticsm get the best of you. It’s funny that the FDA is taking him to trial yet AGAIN this MONTH, even though I just stumbled across this government trial that says antineoplaston work…
http://www.ncbi.nlm.nih.gov/pubmed/16484713

Also if you both have had cancer you may want to consider moving or adapting a healthier lifestyle! Said in love, check out the GAPS diet or other gut-healing diets that are simple and effective. Don’t let the big dogs keep you down!

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Lisa says:

February 29, 2012 at 6:24 pm

Lacie,

Seriously? Did you read our ‘What We Are Doing Now” page?!?!?!? EVERYTHING about our life has changed!!!!!!

Ryuujin says:

June 19, 2012 at 5:05 pm

I wouldn’t say that. This study only include 18 patients, mixing types of cancers with different prognosis, and the overall survival isn’t quite high.
I guess theses 18 patients picked out of hundred are Burzynski best cases, if it’s true, then you can call this an utter failure.

Sheila Herron says:

January 24, 2012 at 2:57 pm

I am so sorry to hear about your husband’s illness. I am writing to share my much different experience. I was diagnosed with Adenocarcinoma of the left upper lobe of my lung in Nov. 2009, and had a lobectomy. The pre-op PET scan found my breast cancer, which turned out to be Stage III triple negative invasive ductal carcinoma. I went the naturopathic route vs/ chemo and radiation, because as an RN for 34 years, I have seenthe ravages the traditional route can cause. I developed a small localized recurrence in Aug. 2011. After surgery, I went to the Burzynski Clinic in Sept. 2011. They ordered a PET scan which discovered my T-2 spinal metastasis. I started on his treatment and was followed up by an oncologist near me who works with Dr, Burzynski for my monthly labs and an injection. Twelve weeks, almost to the day of starting his treatment, my cancer was gone, as verified by my follow up PET scan Dec. 22, 2011. The radiologist had the before and after films up and showed me that it was all gone and that “there is no active cancer anywhere”. This treatment had no side effects, I did not lose my hair, and my monthly labs remained normal. How many other cancer treatments out there can say this? NONE!!! I am very sorry for your husband’s outcome. Every cancer is different. Every treatment path is different. The cost of treating cancer is very high EVERYWHERE. The difference is that insurance covers, (to a ceiling limit), treatment at traditional centers, while most do not at the Burzynski Clinic. I am sorry MD Anderson turned you away. That sounds like malpractice to me. I believe they have an agenda against Dr. Burzynski. I wish your husband a good recovery. You are painting the Burzynski Clinic with a big brush with this page. Your experience is not my experience. God Bless you, and God Bless Dr. Burzynski and protect him against the many enemies aligned against him.

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Delta says:

May 18, 2012 at 3:47 pm

So, how much did it cost?

Lisa says:

February 27, 2013 at 12:07 pm

It was approx 20k to start treatment,….. then 30k per month to stay on treatment. ALL out of pocket, because insurance will not pay for his treatment.

Kelly O says:

October 17, 2012 at 4:05 pm

I am sorry about your experience and can relate. I have stage 4 triple negative breast cancer, am at the end of options for conventional treatment and have been given a death sentence. I have looked into BC as well some other more geographically local Oncologists who give multiple low dose chemotherapy treatments. I actually have talked directly with patients who have had success with these treatments. The problem I have encountered is that my insurance company will not pay for any of these treatments and each visit would cost between $10 and $20,000.00 every two weeks. So, unfortunately I will die a horrible death on one full dose chemotherapy that will work for only a short period of time before becoming resistant because that drug/treatment protocol has been FDA approved. I believe BC has maybe helped “some” people, and that there does need to be a personalized approach to chemotherapy. I dont understand why BC and other “pioneers” in “personalized” treatment cannot make costs affordable for patients. Also don’t understand why it’s legal that FDA, Insurance, Big Pharma can mandate only a “one size fits all” approach to chemotherapy. Seems that change needs to happen on both sides and that money is the bottom line for for everyone. It’s very very sad.

rabi zukerman says:

February 5, 2012 at 3:23 am

this is scam of FDA

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Marsha says:

February 5, 2012 at 4:19 am

I am sorry about your experience with the Burzynski Clinic. We were going to take my 79 yr old mother after she was diagnosed in July 2011 with pancreatic cancer. She had only taken one chemo treatment and my brother thought she should try more chemo first. After 3 treatments, mom could stand no more. Obstructions in common duct, small intestine and large intestine then followed over the next 6-8 weeks, and mom could hardly eat and became very weak. She was just too weak to take to Burzynski or anywhere else ad my sister and I had checked out numerous clinics doing complimentary and alternative treatments. Things didn’t go well for us with her conventional oncologist. He had no compassion, was rude and arrogant. He wrote her off day 1. What even upsets me more is that he told me there were no trials for pancreatic cancer at our initial meeting. Later I found out through the PanCan organization, there were several, some even after taking some treatments. Apparently her physician was not participating in any trials so he told us there were none. He blatantly lied about this. When I found out, she was just getting too weak. You have to fight for yourself and find doctors who care about helping you. We lost our dear Mom on December 29, 2011, only 5 1/2 mos after her diagnosis. I believe alternative and possibly complimentary treatments and faith and prayer more hope than the conventional treatments for pancreatic cancer. With what we have experienced, I now see no reason for someone to just try chemo for pancreatic cancer. We know that is not the answer. Look at the statistics there, yet look how many suckers try that. We fell for it and then had no chance for anything else. I never could figure out why they wouldn’t tell us healthy things she should eat. The book they gave her said to eat lots of protein including red meat, icecream anything with lots of calories. No mention of staying away from sugar. Go figure. Good luck In your fight. I will pray for your husband’s healing.

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Lies says:

February 7, 2012 at 5:57 am

I’m guessing you are one of the many people who where paid by the government to trash talk Burzynski just so you get your precious money… It’s sick and disgusting what people are willing to do for money.
The guys medication worked, the government isn’t supporting him how else will he fund his research? If it wasn’t for him alot of people could have been dead by now. If you can’t afford it don’t complain about it, but I personally know that the treatment is free to a certain level.

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Lisa says:

February 29, 2012 at 6:19 pm

Lies,

Yes, yes,… they send us checks for hundreds of thousands of dollars each month,…. we cashed them all and roll around in piles of it every night!……….. (an attempt at sarcasm)

CRAP! We’ve not received one single penny from anyone!!!!!

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